Biomedical
Managing Uncertainty in Prenatal Diagnosis of Congenital Heart Disease
Peer Reviewed
Abstract
The study focuses on the emotional challenges faced by parents dealing with a prenatal congenital heart disease (CHD) diagnosis, particularly the uncertainty surrounding the condition’s severity and long-term impacts. It suggests integrating palliative care techniques to help pediatric cardiologists support families better. Key recommendations include using more positive terminology like “heart difference,” employing patient navigators, and providing better psychological and social support, especially for those with preexisting mental health issues. It also stresses the importance of communication and a multidisciplinary approach to care.
Key Questions and Answers
1. What is the emotional impact of prenatal CHD diagnosis on parents?
Parents experience significant emotional distress, including fear, anxiety, guilt, and uncertainty regarding the condition's severity and future outcomes for their child.
2. How can pediatric cardiologists manage parental uncertainty?
By adopting communication strategies informed by palliative care, using positive language (e.g., "heart difference"), and incorporating patient navigators to support families.
3. What additional support is recommended for parents?
Psychological support, improved communication, and a multidisciplinary approach involving healthcare systems and social support networks are essential for helping parents cope with the diagnosis.
